Care Fertility Blog

Understanding Endometriosis: A Guide for Women

Written by Dr Lucy Coyne | Feb 25

Endometriosis is a chronic condition that can significantly impact women's daily lives and fertility. This guide aims to provide essential information and support for women dealing with this condition.

What is Endometriosis?

Endometriosis is a chronic and often painful condition affecting millions of women worldwide. It occurs when tissue similar to the lining of the uterus (endometrium) grows outside the uterus. This can lead to a variety of symptoms and complications, particularly related to fertility and daily life.

The misplaced tissue continues to act as it normally would—thickening, breaking down, and bleeding with each menstrual cycle. However, because it has no way to exit the body, it becomes trapped, leading to inflammation, pain, and the formation of scar tissue (adhesions).

Common symptoms and their impact on daily life

Symptoms of endometriosis can vary significantly from person to person. Common symptoms include painful periods, pain during or after intercourse, chronic pelvic pain, fatigue, and issues with bowel movements or urination, particularly during menstrual periods. Some individuals may also experience heavy menstrual bleeding or bleeding between periods.

These symptoms can have a profound impact on daily life, affecting physical and emotional well-being. Pain and fatigue can make it difficult to maintain regular activities and may lead to missed work or school days. The emotional toll of chronic pain and fertility issues can also contribute to anxiety and depression.

Diagnosis: What to Expect

Diagnosing endometriosis can be challenging due to the variability of symptoms and their overlap with other conditions. On average, it can take around 8 years from the first GP visit to a definitive diagnosis. The process typically begins with a detailed medical history and a physical examination, including a pelvic exam to check for abnormalities.

Imaging tests such as an internal pelvic ultrasound or MRI scans may be used to provide more information. However, the gold standard for diagnosis is laparoscopic surgery, a minimally invasive procedure that allows doctors to view and biopsy the affected tissue directly. While this procedure is invasive and costly, it provides a definitive diagnosis.

Endometriosis is classified into four stages (1-minimal, 2-mild, 3-moderate, 4-severe) based on the extent and depth of endometrial tissue growth. Each stage can have different implications for fertility, with more advanced stages generally posing greater challenges to conception.

Possible Causes of Endometriosis

The exact cause of endometriosis is still unknown, but several theories exist. One theory is retrograde menstruation, where menstrual blood containing endometrial cells flows back through the fallopian tubes into the pelvic cavity instead of leaving the body. These cells then adhere to pelvic organs and continue to grow and bleed over the course of each menstrual cycle.

Other possible causes include genetic predisposition, immune system disorders, and hormonal imbalances that affect tissue growth. Some researchers also believe that certain environmental factors may play a role in the development of endometriosis.

Treatment Options and Fertility Solutions

Treatment for endometriosis can vary based on the severity of symptoms and the patient's goals, particularly in relation to fertility. Pain management is often the first step, using medications such as nonsteroidal anti-inflammatory drugs (NSAIDs) or hormonal therapies to reduce or eliminate menstruation.

For those seeking to conceive, fertility treatments may be necessary. These can range from ovulation induction and intrauterine insemination (IUI) to more advanced assisted reproductive technologies like in vitro fertilisation (IVF). Surgery to remove endometrial tissue can also improve fertility outcomes for some individuals.

At Care Fertility, we offer personalised treatment plans tailored to each patient's unique situation. Our goal is to provide comprehensive care and support to help those with endometriosis achieve their dream of building a family.