ENDOMETRIOISIS EXPERT GUIDANCE

As Endometriosis Awareness Month (March) approaches, fertility experts are calling for greater understanding of how endometriosis can affect fertility and why earlier diagnosis, personalised care and emotional support are critical for patients trying to conceive.

Endometriosis affects around one in ten women, yet many live with the condition for years without a diagnosis. For those hoping to start a family, the uncertainty surrounding fertility can be one of the most distressing aspects of the condition. Dr Victoria Sephton, Chief Medical Officer at Care Fertility, explains the realities patients face and the options available for those worried about their fertility.

What is endometriosis and how can it affect fertility?

Endometriosis occurs when tissue similar to the lining of the womb grows outside the uterus, often around the ovaries, fallopian tubes, bowel or bladder. This can lead to inflammation, scarring and adhesions, which may interfere with ovulation, egg quality or the movement of eggs and sperm.

“Endometriosis doesn’t always cause infertility,” explains Dr Victoria Sephton. “Many people with the condition conceive naturally. However, for others, it can make conception more challenging, particularly when the condition is moderate to severe or has been present for a long time.”

The common challenges patients face when trying to conceive

“For many patients, the difficulty is not just physical but emotional. Painful periods, fatigue, and unpredictable symptoms can take a toll, while the uncertainty around fertility can create anxiety and self-doubt. Patients often tell us they feel frustrated and worried, especially if they’ve been trying to conceive for some time without answers,” says Dr Victoria Sephton. “There can also be a sense of pressure both internal and external to ‘keep trying’ without knowing whether additional support is needed.”

How IVF treatment can be tailored for people with endometriosis

For patients who need fertility treatment, IVF can be carefully adapted to account for endometriosis. Treatment plans may consider hormone sensitivity, ovarian reserve, pain management and previous surgeries. “There is no one-size-fits-all approach,” Dr Sephton explains. “We tailor IVF treatment based on the individual taking into account the severity of endometriosis, symptoms, and overall reproductive health. The goal is to maximise outcomes while minimising discomfort and stress.”

Managing symptoms, expectations and emotional wellbeing

Living with endometriosis while undergoing fertility treatment can be physically and emotionally demanding. Managing pain, navigating treatment cycles and coping with uncertainty can all impact wellbeing.

“Emotional support is just as important as clinical care,” says Dr Victoria Sephton. “Patients benefit from clear communication, realistic expectations and support networks that acknowledge how difficult this journey can be.”

Reassurance for those worried about fertility

“While endometriosis can complicate fertility, it does not mean pregnancy is impossible. It’s important for patients to know that having endometriosis does not automatically mean they won’t conceive,” Dr Victoria Sephton reassures. “Early assessment, personalised care and the right support can make a meaningful difference.”

Why diagnosis is often delayed and why awareness matters

“Despite its prevalence, endometriosis is still widely underdiagnosed. Many patients wait years for answers, often because symptoms are dismissed as ‘normal’ period pain. Delayed diagnosis can have long-term consequences, both physically and emotionally,” Dr Victoria Sephton explains. “Greater awareness, among patients and healthcare professionals is essential to ensure earlier intervention and better outcomes.”

Care Fertility is supporting Endometriosis Awareness Month by raising awareness of the condition, sharing expert insight, and offering reassurance to patients navigating fertility concerns.

ENDS